Beyond Blue

Ken Duckworth, M.D.: How Do You Move Beyond Blue?

Friday September 21, 2007

Categories: Mental Health
Back in July, I had the privilege to interview Dr. Ken Duckworth, the medical director for the National Alliance of Mental Illness (NAMI), through a blogger conference call hosted by Revolution Health. Below I have excerpted part of the...
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Comments
Larry Parker
September 21, 2007 12:24 PM

Excellent podcast, and well worth the listen. (Although the audio quality is poor -- which perversely made your transcription so difficult and simultaneously makes a further transcription helpful to BB readers ... sigh.)

A couple of thoughts:

1. I don't think the idea that mental illness is "chronic" automatically makes it "untreatable." But there's no objective question that it is chronic (note Dr. Duckworth's chilling remark about how 1 in 10 lives of the seriously mentally ill ends ...) and, as Dr. Duckworth would note, just because mental illness is treatable, and that some or even many patients do well, doesn't mean the treatments are perfect or even particularly well-targeted, to say the least.

2. There is another side to the question of faith and depression. Just as for many people, their faith is the only consolation that keeps them going, for others (yours truly), their depression causes them to question the religious and theological teachings of a lifetime. I would agree with Dr. Duckworth that a therapist/psychiatrist not addressing these questions on EITHER end is a form of malpractice, morally if not legally.

Aimee
September 21, 2007 6:32 PM

I am one of those people that rely on my faith and spirituality to help me through tough times.

"just because mental illness is treatable, and that some or even many patients do well, doesn't mean the treatments are perfect or even particularly well-targeted, to say the least."

I agree- the medication that I take is targeted for people with epilepsy. It really does help me, but at first I was worried that it wouldn't work since it wasn't specifically for my issues.

Love this blog, and I will definitely be back! Thank you for sharing!

Aimee
http://anxiousnomore.blogspot.com

Larry Parker
September 22, 2007 11:19 AM

Most medications besides lithium used as mood stabilizers for people with bipolar disorder, of course, were originally developed for epilepsy.

We know they "calm" the brain. As Dr. Duckworth basically said, we have no idea WHY :-(

Pamee the Peer supporter...
September 22, 2007 12:05 PM

I find the comment regarding lithium being originally used for epilepsy,fascinating as I had a grand mal seizure at age 2 and was on meds for 12 years. So the connection with my familyies mental health issues makes alot of sense...so then
my sister who was dx bipolar at age 20 went on to try lithium for a short while but was unsuccessful due to not being cooperative in getting her blood tested on a regular basis. I have clincal depression,
at age 45 I've been stable on wellbutrin for 4 years now and due to
sexual abuse traumas that were never really dealt with until I turned
35. I was hospitalized for two weeks during the summer of 1997, it sucks to be suicidal...I hope I never have to go there again...its
like being in a freefall within a black hole or abyss!
Iam now getting certified here in WI to be a Peer Support Specialist. I so appreciate this website and all the wonderful information that is being offered here to help me help others on their
journey to wellness. Thank YOU Dr. Duckworth and Therese Borchard

Larry Parker
September 22, 2007 1:45 PM

Actually, I don't think lithium was ever used for epilepsy -- only the class of anti-seizure drugs like Depakote, Tegretol, Lamictal, Neurontin, Topamax, etc.

Lithium is chemically different -- a natural salt. There are towns in the South called "Lithia Springs" where people once soaked in spas with lithium-filled water to get "healing" -- and probably, from what we know now about lithium, some no doubt did!

(In fact, just as Coca-Cola once had cocaine in trace amounts, 7-Up once had lithium in trace amounts from such lithium-filled water!)

There were thoughts in the late '40s and early '50s of making lithium a low-calorie substitute for table salt to prevent heart disease. Unfortunately, as we know now, if you sprinkle a bunch of lithium on your french fries, the dose can be extremely dangerous. (As I recall, I think some of the "food testers" may even have died ... ugh.)

The difference between lithium's "therapeutic range" (where it helps treat manic depression) and its toxic range where it poisons the body is very small -- thus the need for periodic blood tests. As a result, lithium was banned in the U.S. for many years -- despite some simultaneous research showing incredibly promising results in Australia ...

... which ultimately resulted in lithium coming to be used to treat bipolar disorder. This is just the simplified version of a truly fascinating story:

http://en.wikipedia.org/wiki/John_Cade

Amazing that such an interesting and mostly positive story (despite its ups and downs) has resulted in such a stigmatized drug. (Sigh.)

mary
September 22, 2007 6:42 PM

Yes, please post the rest of the interview. It's interesting and helpful.

Lynne
September 22, 2007 7:07 PM

I would definitely classify myself as the faith sustained depressive. When I am at my darkest is when I have moved the furthest from God. He never leaves...I do. Luckily He's always waiting patiently when I return from "The Dark Side" I remember when my favorite uncle died. The whole family was there at his passing by his bedside. His son Michael said "It's okay to go, you can let go now" It was the most unexpectedly peaceful thing I have ever witnessed. I could see the Christ figure in him at that moment. He was a faithful christian. I felt the sorriest for my aunt. It's always the hardest on those left behind. When I was alone for a moment in the cemetery I heard a voice. It was the most beautiful sound, of a young man and he said "Let your soul be at peace, for I am with you...always" If you are a believer, no explanation is neccesary. If you are not...no explanation is possible. (that doesn't make me sound like a lunatic) I BELIEVE!

Patricia B.
September 22, 2007 8:38 PM

Please post the rest of the interview with Dr. Duckworth!!! He seems to be one in a million who absolutely understands,especially when it comes to substance abuse and mental disorders. What I learn on this blog is sooo helping me to educate my current "doctor" to the point he no longer treats me as if I'm nothing more than a junkie looking for 'legal'drugs and by presenting him with information as to why I self-medicated is slowly but surely (very slowly!!) leading to the correct combo of meds for me. I once told him I don't have a problem getting drugs(illegal)but that's not what I want to do and I'm aware that a diagnosis of adhd (maybe bipolar also) at age 50 may not be the norm but I used meth for the past 16 years and functioned highly and since being clean (103 days!!)I am now having major problems functioning. Of the many,many challenges that I have faced head-on and beaten,being,staying and learning how to live clean is without doubt the most difficult!! But I am sure that because of underlying mental issues without treatment with medications,along with groups and therapy,I am setting myself up for a relapse. And without this site,Therese,and others who share their lives,because this has become my self-medication,my homework so to say. It feels great to go to my 'doctor'with information he is not aware of to back my ideas,suggestions and requests. Thank you from the bottom of my heart!! And by the way,you are doing super with your video blogs,keep up the great stuff!!!What you are doing has been a lifesaver for me and I'm sure many others!Peace and Love from a faithful reader!!!

Larry Parker
September 22, 2007 8:57 PM

Patricia:

Even though (if you read BB) you know I'm not the most faithful of believers, believe me when I say I pray you stay in your recovery. You are doing an amazing and incredibly difficult thing. I understand meth is, chemically, one of the most addictive substances on the planet. As you're probably already being told, one day at a time.

There is an incredibly high rate of "dual diagnosis" (substance abuse occurring simultaneously with mental illness such as bipolar disorder and/or ADHD). Precisely because, as you said, it's a way people who know they have something "wrong" but don't have a diagnosis can "self-medicate."

And, as the difficulties you are going through probably have already silently "told" you, people with dual diagnosis are more likely to slip back into substance abuse than those who have a substance abuse problem but not a mental health diagnosis. You have a hard row to hoe -- again, as I know you know.

I am just plain lucky (or should I say, blessed?). Yes, I have bipolar disorder, but I could easily have had a dual diagnosis like you. My father is an alcoholic and I was headed down that road (binge-drinking my way through college) when a friend of mine did an intervention on me at age 23. I've been a teetotaler now for more than 15 years (without AA, although I did attend Al-Anon for several years).

Speaking of which ... mental illness support groups may be extremely helpful for you, both to get some perspective from other people in your "boat," and perhaps to get resources to find another doctor who is more familiar with treating dual diagnosis patients.

In addition to the many resources Therese puts on her site (including of course, nami.org, the Web page for Dr. Duckworth's organization), might I suggest the organization that sponsors my support group:

http://www.dbsalliance.org

Again, we are all thinking about and praying for your continued recovery and mental health.

PS -- Some substance abuse support groups will encourage you to give up psychiatric medications since they too are "drugs" in their opinion. Personally speaking, I strongly oppose that view; and if anyone in a support group encourages you in that direction, I'd suggest at least that you speak to a doctor (even your current doctor you don't really like) first. Just IMHO.

Anonymous
September 23, 2007 1:30 AM

yes please type it out this sounds great !! more more

Barbara
September 23, 2007 2:50 PM

Let me begin by telling you all that I am a high school teacher and live in a rural, conservative, suicide-stigmatizing culture. A little over two years ago, my beloved youngest brother, who was a high school guidance couselor, completed suicide. I have always struggled with low grade chronic depression, but this trauma sent me over the edge into what my psychiatrist has dg as chronic severe depression, panic disorder and PTSD. All of those were latent in me until my brother took his life and suddenly the whole world stopped, except my intense depression and constant grief. This, combined with an exacerbation of my rheumatoid arthritis, kept me out of the classroom for the first semester after his death. Since then, my grief and therapy journey has been active, not always straightforward, but cyclical and I have begun to speak out. I wrote an article for our local paper in which I wrote about his suicide and invited the public to attend a suicide survivors' group I was starting with my therapist and another clinical social worker. The group attendance was low, I now believe, because we chose to hold it in the conservative stronghold community of the area and feel that if we try to move it to a local university town, our attendance would improve. In addition, I have spoken to university classes about my loss and the warning signs, the grief, etc. and have been very open with my 12th grade classes. No one in the school community has complained, perhaps because I'm a vet, and well-respected as a teacher. I agree so much with the advice here. Meds need to be tweaked until the right combo is found. It's frustrating by I'm now on celexa supplemented by cytomel and use clonezapam for threatening anxiety attacks. My startle reflex comes and goes now, and I am still seeing my therapist with regularity. The loss I experienced blew the top off of the volcano of my unconscious and since then I've been processing my life and growing spiritually into a new person. Reconstruction is like reincarnation and it hurts! But so worth the effort to be honest, to struggle, to weep and to laugh, to meditate and be thankful. All spiritual paths lead us to one unity and there are many "good red roads" in this world we live in.

Blessings!

Denise
September 28, 2007 12:03 PM

PLEASE print the rest! There are people reading this, suffering with depression, who need to read it. Some may have computers that do not support podcasts very well, and others who have auditory issues, whether it be physical or the learning type. I realize it is a lot of work, but you will be helping a lot of people!! Thank you so much for all you do!

kathy
September 29, 2007 2:39 PM

yes, please post the rest i am very depressed and would enjoy reading more of it

Shirl
September 29, 2007 8:25 PM

I do not know what my problem is, but have suffered from much sadness. This seems to be helping me so that I do not feel alone in this. Too much bad luck, a very hard head lol, or depression. I just really do not know. I do feel that I think in a rationale manner, but life is just so very sad. Thanks so much for trying to help.

Laurie Sabala
October 4, 2007 6:33 PM

please type out the rest of the interview so that I am able to read it when I have more time to go over it again and again. (while on the bus to work, during lunch break ect)
As a Family Member and conservator of a dual diagnosis patient I am always looking for anyone with compassion towards Mentaly Ill people.
Let a lone a doctor like Dr, Duckworth with education and experience as well as compassion.

Jill
October 5, 2007 6:13 PM

Yes, please do so if it won't be too stressful or burdensome.

gramoo Rae
October 8, 2007 3:57 AM

Please post the rest,Iám really researching depression and bi polar now, as Í have been on meds for 15 years and still have lots of problems, I also have fibromyalgia and that's what they thought the depression was from due to so much chronic pain. The more I read the more I feel like I have bi polar tendencies and others in my family have mood disorders also. My 8 yr old grandson was just diagnosed as bi polar and put on meds. This is such a confusing illness, and it's hard to find good docs to help that really care. Let's all keep plugging along to understand mental health and hope that more people become caring docs in the near future. Bless you all and don't lose faith! My grandkids call me gra "moo"instead of grandma.If any one else suffers from fibromyalgia and has serious depression from it I would like to hear from you. I have horrible SAD in the Summer, where I live it is so hot and the heat makes my Fibro really bad. I also have SAD really bad around the holiday months when the weather is really changing where I'm from.

Cece
October 13, 2007 7:45 AM

I'm so glad that you did this interview and have shared it with so many. I suffer from severe major depression with suicidal tendencies and borderline personality disorder. I found it interesting that depression and suicide runs in families. I have yet to find anyone else in my family (or family history) that has had these problems. I also don't have the combination of alcohol or drug abuse, so I am very interested in reading more. I have suffered of depression since I was very young. I spent 30 years in a deep and secret silence before I got a little help. Then there is the stigma of being labled with a mental illness and the way people react when they learn about "our" conditions. I've heard things like "just get over it", "you are going to burn in hell", and these are comments I've heard from so called friends and siblings. I just recently got out of the hospital from another failed suicide attempt. At this time I am sitting here crying and feeling totally void and empty of all positive emotions and feelings. Thank you and Dr. Duckworth for not only informing those of us who suffer, the people who do love and care about us, but now I can share the information with the people around me who are ignorant of the facts.

Sandra
October 14, 2007 3:14 AM

I would like to read more. I am severly depressed right now and seriously thinking about not taking my medicine so I can die. I have diabetes, congestive heart failure, and end stage renal failure. I am going to have to go on dialysis in the very near future and I'm scared. I have a daughter who hates me and claims my husband (her step-father) molested and raped her repeatedly all of her life and that I knew it and let it happen. Everywhere I move to, she comes along and tells her story. I moved here to be close to my parents and sisters after my husband died and now my parents have passed on and my daughter came up and told my sisters her story and now they have turned against me.I thought my older sister was on my side but tonight she told me exactly what she thought of me and called me a b---- and other things and said what a horrible mother I had been and on and on and on. I have been crying for hours and I just want to die. I have nothing left to live for.

melonie
September 27, 2008 9:15 AM

I would love to read more about this please post the rest of the interview I have a son that has rapid cycle bipolar and odd adhd he has high blood pressure and he is on tons of meds . and I need as much information I can get I had just found out about nami just a couple of days ago and I am really excited to meet with the president there I have talked to her on the phone I have taken my son to many of drs and got him treatment and seen people he can talk to and evrytime I talk to the dr and ask him for advice on where can I go for more help or what can I do he just tells me to call and have him locked up or puts his head down and doesnt give me a straight answer. I feel locking a child up with this mental illness is not going to help him its going to make it worse please if anyone can help me please email me at mchace112971@aol.com thank you god bless

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