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We are proud to offer an extensive array of supportive features in honor of Breast Cancer Awareness Month. But as one of our authors, Lori Hope, points out in this powerful guest post, it can be difficult to be a non-breast-cancer survivor in October because you can easily feel like your disease is carried out to sea on a tide of pink ribbons. –Holly
It‘s
challenging to be a Breath Cancer survivor during Breast Cancer Awareness
Month. What‘s Breath
Cancer? It‘s the
cancer that attacks the organ behind the breast, the organ we cannot live
without.
Its proper name is Lung Cancer. But I prefer to call it
Breath Cancer, because it literally and permanently takes the breath from a
jumbo jet-full of people every day.
I bet you‘re
wondering if I smoked. Did you know that up to 20% of people with Breath Cancer
never smoked, 60% don‘t
currently smoke, and most of us wince at the question?
People don‘t
ask Breast Cancer survivors whether they‘re
overweight or drank wine (raises the risk), exercised (lowers risk), or got
regular mammograms. Is this partly because Breast Cancer is sexualized? As the
new “Save the
Boobs“ PSA shows,
breasts are beautiful. And the thought of losing them? Terrifying. No blame, no
shame to Breast Cancer.
Not so with Breath Cancer. Although it‘s usually caused by
smoking – which like
overeating, is a lifestyle choice –
most fighting the disease don‘t
smoke. But that shouldn‘t
matter anyway. Cancer is cancer. I lost one friend to Breast, another to Colon,
another to Breath Cancer. Did one deserve to live more than another?
It‘s
challenging to be a Breath Cancer survivor during October because everyone cares so vocally about Breast Cancer. And although Breath Cancer kills twice as many
women, during Lung Cancer Awareness Month (November), you won‘t see invisible ribbons (the non-color of
Breath Cancer) used to hawk everything from tissues to tampons.
Stigma has kept Breath Cancer deplorably underfunded. And
that‘s why only 15%
of us live longer than five years. That‘s
unfair. So please. Care.
And by the way, yes, I smoked, but quit almost 20 years before my
diagnosis. Regardless, don‘t
I deserve to live?
Lori Hope is the author of the top-rated cancer support book, Help
Me Live: 20 things people with cancer want you to know, and speaks and blogs about
how to help people facing cancer and other life challenges. For more
information, see LoriHope.com, or read her
interview with Time,
“How to talk to a friend with breast cancer”.
Read Lori’s powerful cancer features on Beliefnet:
How to Keep Hope Alive Through Cancer
Wise Words from Cancer Survivors
(image via http://shop.advanceweb.com/)
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posted October 13, 2009 at 1:52 pm
What a fantastic, direct and poignant piece. I completely relate. I lost my mother to “breath cancer” almost two years ago and each year when October transitions into November and Breast Cancer Awareness Month transitions into Lung Cancer Awareness Month, I am sharply reminded not only of the painful absence of my mother – but also of the absence of any recognition at all of this terrible, terrible disease. Even though lung cancer takes TWICE as many women’s lives as breast cancer, you’d think that breast cancer was the more fatal disease.
Sadly, having lost my mother (who also had quit smoking for 18 years when she was diagnosed – and died 3 months later) I can attest to how fatal the disease truly is.
posted October 13, 2009 at 1:56 pm
I agree with Lori, who is so blessed by her ability to put into words what the rest of us feel. I was a non-smoker as were several other people in my area that are survivors. Some have hidden because of the stigma. It is not about Lung Cancer but the number one cancer killer!
posted October 13, 2009 at 3:33 pm
October is a very hard and sad month for all of us who suffer from cancer. I am a stage IV breast cancer survivor, the cancer spread to liver and bones and I was given 3 to 5 years to live because it spread so quickly. I had a mammogram every year since I turned 30 years old. in October of 2006 I was diagnosed and I had a mammogram in April 2006, what happened I often asked myself? so no matter what type of cancer you have it’s bad and really sad that they don’t do enough fund raising, for lung, breast or any other type and there is no cure for us. so live life happy every day to the best of your ability…best wishes to all.
Sunshine
posted October 13, 2009 at 4:07 pm
Lori is right. As a lung cancer survivor I sympathize with all of us cancer survivors, but when I see a pink bagel in a coffee shop while having to accept the annoyance of having smoke blown in my face in most public places still, I’m aware of the “it’s not fair” feeling. It’s not fair that smoking is still socially acceptable yet when you get lung cancer you feel you need to just shut up and eat pink bagels, if your lucky enough to be alive to eat one. Maybe if more lung cancer patients did survive we could have more impact with our own badge of awareness,and could stick up for our “breath” rights.
posted October 13, 2009 at 4:15 pm
Very well said, Lori. Three years ago this October my beautiful 19 year old daughter was traveling to Vermont and Canada on vacation. Just a couple of months later I had to say goodbye to her forever…all because ‘breath cancer’ doesn’t discriminate and doesn’t care who it affects. You put into words what so many others want to, but can’t. Thank you.
posted October 13, 2009 at 4:23 pm
Great article. My point will be made by the comment below that was posted by a well-meaing PHYSICIAN on a Newsweek article at msnbc.com about the pink movement. Lung cancer patients lumped together as having caused their own suffering. The link to the story is below.
http://blog.newsweek.com/blogs/thehumancondition/archive/2009/10/13/seeing-red-in-pink-products-one-woman-s-fight-against-breast-cancer-consumerism/comments.aspx
Posted By: swils10 (October 13, 2009 at 3:27 PM)
I am a doctor who makes cancer diagnoses every day. What about the really unfortunate people who have newly diagnosed pancreatic cancer or brain cancer (glioma) or acute leukemia or a host of less common but far more deadly cancers than breast cancer? Why is it that they don’t have the political muscle of the breast cancer industrial complex? Lets make this pink ribbon thing represent all cancers (even lung cancer and the mostly smokers who get it). Breast cancer has benefited from advances in early diagnosis and now genetically targeted approaches to treatment. We will get far more bang for the research dollar if society and the politicians spent more on the basic science of oncogenesis and on the cancers who have been left behind.
posted October 13, 2009 at 4:34 pm
Thank you for writing this article, Lori. How can people know how insensitive they are by asking lung cancer survivors about their smoking history and how underfunded lung cancer research is until people like you share their story? If corporate America really cared about women’s health, they’d support lung cancer awareness. Thanks again, Lori, and thank you, Beliefnet! As a fellow lung cancer survivor I appreciate it!
posted October 13, 2009 at 4:46 pm
I am a Lung Cancer survivor whom never smoked. I watched my dad die a very painful death from this dreadful disease, yes he smoke but had quit 17 year prior to his diagnosis. Fall is a very difficult time for me as it is when he was diagnosed with Stage IV and he died a few months later. I truly believe that there needs to be more compassion and less judgement. NO one deserves to die from any sort of cancer. I pray for those that struggle every day. One must value each and every day as it is truly a gift. Peace.
Lori, thank you for writing such a touching piece.
Mary Beth
posted October 13, 2009 at 5:03 pm
Thank you, Lori Hope, for such a poignant look at the daily reality of a lung cancer patient. As if the disease and its death sentence aren’t enough (particularly with small children at home), the marginalization of our population and the lack of hope for decent therapeutic options because such a small (and I mean, teeny) fraction of research funding is dedicated to the biggest cancer killer. Your words say SO much!
posted October 13, 2009 at 5:44 pm
I agree completely. While I don’t take away from the Breast Cancer movement for making things happen, I am annoyed by the corporations that “pink-wash” products in perhaps a greater effort to get on the bandwagon and sell things than to actually help cancer research. As another poster mentioned, Lung cancer kills twice as many women as breast cancer and the corporate support just isn’t there. Makes you want to wonder. Is it because you can’t make an invisible toaster, umbrella, can of soup?
posted October 13, 2009 at 7:11 pm
Thank you very much for bringing to light (although in a much too small forum) that breast cancer IS NOT the #1 cancer. Lung cancer is and continues but is poo poo’d as a lifestyle choice versus a “cloaked killer” that preys on women (and mothers!!) who were ambushed by this unwanted disease. I don’t see a rainbow of colors for brain cancer, prostate cancer, pancreatic cancer, etc… I take care of people (male and female) with cancer and no one WANTED it. Why does a 25yo male who chose to dip Copenhagen for 10 years and now has oral cancer get tossed aside because Yoplait dodn’t see it as a marketable “fit”. The NFL is primarily a male oriented fan base but we have 350 pound linemen roaming around the field in Pink shoes and gloves because some Harvard MBA at the NFL offices in New York thought it would be “great” PR. How about prostate cancer screening awareness (or more important-testicular cancer awareness-affects those males 17-25-seems like a dream NFL demographic). Sorry to sound cynical, but pink this and that is taking it’s toll. How about pink for ALL cancers and October for ALL cancers as well.
posted October 13, 2009 at 7:11 pm
I just lost my husband to Breath Cancer this past August. He was 39 when diagnosed, never smoked and fought the battle like a true warrior for 9 years. While I wouldn’t wish some of the pains and sufferings of Cancer on my worst enemy, we need to have more research, awareness and funds focused towards all Cancers not just the one in the pretty pink package!
posted October 13, 2009 at 7:36 pm
Dear JJulia, Tammy, Julia Stroud, Sunshine, Janice M, Eric, Katie, Steph, Patrice, PSN,
Thank you for your thoughtful and incisive comments. I’m just blown away by them all. Wish I had time to respond to each of you, but know that I am so heartened that people care enough to speak out, and because of that, pinkwashing is getting more and more media attention.
Again, my thanks to you all!
Lori
posted October 13, 2009 at 8:02 pm
Lori,
I am standing up here in Florida and clapping for your story posted here. I am a 32 year old guy who has “Breath Cancer” found by accident, thank goodness, and recovering from a Lower Left Lobe Lobectomy that I had just 12 days ago at Moffitt in Tampa. While I do not think one cancer is more important than another, I think all of us would be better served if we just didn’t focus on one, no one deserves to go through what I have been through in the last 2 months! I work in parntership in the cosmetics industry and most of my vendors are big on Breast Cancer Awarness and have been doing a lot this month, I have been taking some of my recovery time to remind them of the danger of “Breath Cancer” and reminding them that there is no self test you can do as of yet, and there isn’t any early detection that can find this yet, and it doesn’t matter who you are, or what you do Breath or Breast Cancer is nothing to wish on anyone!
Thanks again Lori,
Christopher
posted October 13, 2009 at 8:03 pm
Well said.
Thank you.
posted October 14, 2009 at 2:06 am
Bravo Lori!
Thank you for writing this article. I agree w/Eric that for one cancer to be singled out as the poster child of cancer research funding is appalling and frustrating to those of us who have lost a loved one to another kind of cancer. And like Christopher, I believe we all need to stand up and SHOUT that lung cancer is just as important. And like your article says, no one deserves to die just because they got the wrong kind of socially acceptable cancer.
posted October 14, 2009 at 7:50 am
The world shold know that we all have a risk of cancer in our lives. I felt I was above that (the other person not me thing) Well it seems I was wrong. March of this year I was told I had breast cancer.
While I have gone thru chemo and now radiation, I have had the pleasure of meeting so many wonderful people who have cancer or taking care of us who have. I have learned a lot and want to thank every one who helps in some way.
I am not at the end of this but I feel I have become a different person for this. It dose not matter what type cancer one has, we should be there for them and stand up and say I survived and help the others who may come our way.
posted October 14, 2009 at 8:15 am
Wonderful. My brother just died from breath cancer 7 weeks ago and I applaud the efforts of the pink campaign and would love to see breath cancer get the same support and research.Keep writing these informative blogs please.
posted October 14, 2009 at 8:35 am
Thank you Lori for this article. I just wanted to add that for every woman that dies from breast cancer, over $27,000 has been spent on research, for every person that dies of lung cancer less then $1,300 has been spent. Breast cancer has a 89% survival rate at 5 years, with lung cancer less then 15%. I find that unacceptable. That I have less then 15% chance of being alive in 5 years to see my little girl graduate from high school. I too am a breath cancer FIGHTER. I was diagnosed this past April with Non-Small Cell Lung Cancer Stage 3A. I had part of my left lung removed, have gone through chemo and radiation, lost all my hair and feel guilty when people ask me what type of cancer I have because when I say lung cancer, the first question is always “Did you smoke”. My answer now is “Does it matter?”.
Blessings
posted October 14, 2009 at 8:53 am
Well stated! Maybe you have breathed some life into November, Lung Cancer Awareness Month!
RMS
posted October 14, 2009 at 9:53 am
very well said lori ,thank you . EVERYONE with cancer deserves the same chance of survival!
posted October 14, 2009 at 1:02 pm
Lori – thank you for speaking such wonderful words. I am with my mom now – who is fighting Breath-Lung cancer. I am so tired of the “did you smoke” question….does that make her less qualified to survive? The public needs to know that it is NOT just a smokers disease. While I am happy for the breast cancer survivors and their pink-ness it is so sad that all the rest of the cancers are such orphans. Thanks again for bringing this subject to light.
Bridget
posted October 14, 2009 at 10:25 pm
Lori Hope has picqued a lot of interest in the debate of who deserves more and how we as a group (cancer patients) have to almost grovel for a few crumbs of funding. It is disgraceful to have so many poor sick people trying to raise money to keep themselves alive. Not one of us survivors should have to beg for funding. When enough of us get mad enough and let the politicians know we will overcome this disgusting and demeaning way to raise funds.
My hat is off to Lori Hope and her precious words to help us see the way. I’m so sorry I can’t be quiet anymore. Keep on writing Lori an another exceptional piece.
posted October 15, 2009 at 10:13 am
Again, I wish I had time to respond to all these amazing comments. Thank you all for weighing in on this and sharing your thoughts and feelings!
Just briefly, Christopher, like you, my tumor was discovered by mistake and I had a lower left lobectomy 7+ years ago. My life changed forever, but I got back to “normal”, or at least the new normal. You will too, even if it doesn’t feel like it now. And thank you for what you’re doing for all of us!
Greg’s sister, I am so very sorry for your loss.
42 and fighting, I love that response. And sometimes I use that question as an opp to educate people. But when I was first diagnosed, it was like fielding a punch every time people asked it.
RMS, I like that, “breathe some life into LCAM.”
Bridget, you’re right, other cancers seem like orphans. And a dad of a 6 yr old with a very rare form of cancer just posted a comment on my blog, and it’s just heartbreaking and infuriating.
Your Name, I’m thrilled that you can’t be quiet anymore. And to the other Your Names, again my thanks!
BTW, a major lung cancer demonstration is being planned; if you’re interested in getting on the list, please message me directly through my website, http://lorihope.com/?page=invite
Always hope,
Lori
posted October 15, 2009 at 2:08 pm
I watched my 79 year old mother fight breast cancer 10 years ago-she will be celebrating her 90th birthday in November. I buried my 52 year old husband in April after a 4 month battle with Breath Cancer. The difference in the two, besides the obvious mortality rates, is that breast cancer can be detected with screening and even self exams. Breath Cancer, on the other hand, is often not detected till it has metastasized to other parts parts of the body-almost like wild fire out of control. Too many people with Breath Cancer live months-what we wouldn’t have done for a 3-5 year prognosis. At least that would have given us time to hopefully find new treatments that were even longer lasting. We need to join together and recognize Breath Cancer for what it is -the #1 cancer killer. Let us start putting money into research for a cure instead of dumping millions into treatment that ultimately leads to the same sad outcome.
Thanks again Lori for bringing this information to light to so many people.
posted October 16, 2009 at 11:10 am
Pat, I am so sorry for your loss, and so grateful to you for bringing up the mortality rate and the screening issue, which is huge. Yes, let’s put money into research for a cure – first we must educate and build compassion…quite a task. Thank you for speaking out on our behalf!
posted October 17, 2009 at 10:59 am
Lori – My Mom passed away in her 60′s from lung cancer. People always ask if she smoked, as though that somehow justified her suffering. My father-in-law died at 60 from melanoma. My husband had his first incidence of melanoma at 29 and a metastasized recurrence at 34. Colon cancer is a huge killer of women and men alike. There are many types of cancer which we all may be subject to. Research for most of these cancers is not well funded. I applaud the breast cancer survivor network in their fund raising efforts, but would like to see funds and awareness for the other diseases as well. Each of these people suffer, and each deserves an equal chance at survival.
posted October 17, 2009 at 11:21 am
Lori:
I was diagnoised with Breast Cancer 2 years ago, I had the mastectomy and I am taking Tamoxifen. I lost my mother and sister to Breast Cancer. Thanks, for all the encouragement from your readers.a5edr5
posted October 17, 2009 at 11:41 am
this may sound crass but I often wonder… with ALL the money raised for Breast Cancer… why isn’t there a cure? Is it because there’s too much profit to be made on screening & treatment? Corporate for-profit health care does not serve the patient, only Wall Street. Forgive me if I’m wrong about this perception, but everytime I loose someone close to my heart to this disease (and other cancers)… it’s the main thing that I wonder about.
posted October 17, 2009 at 12:19 pm
Dear Lori,
I really wish you had been more positive in your article instead of negative.
There is no reason to attack those who work tirelessly to raise funds for breast cancer research and awareness.
My sister-in-law died in 1991 after a long fight with breast cancer, and I have chosen to be active about raising funds ever since.
I run in the local Susan Komen “Race for the Cure” each year, and get others to donate to the foundation for research.
I suggest you put a positive effort towards “breath cancer” in much the same way that others have worked so hard for breast cancer.
Get others involved- get publicity- do whatever you have to do, but do so in a positive manner.
Sincerely,
BILL WELCH
posted October 17, 2009 at 12:45 pm
Joyce, you are right on! What I don’t understand is why the public doesn’t demand to know EXACTLY where all this fundraiser money is going… (Lost my father to lung cancer, friends & cousin to breast cancer & other cancers). OK I know it’s going to ‘Research’. So many of the volunteers have been trained to say ‘It’s going to Research’. I do believe a portion of it does. I have worked both in the medical field (Laboratory) and the ‘research’ field. I want to know how much money from a “particular fund raiser” went to ‘what research group(s)”?. Who headed the research group? Exactly what type of research, specifically was performed and why? And I want to know what the money was used for (a list); along with ‘what was DISCOVERED’ as a result of all this ‘donated’ money. Where is the ‘accountability’?? They have turned it into a business, so now let’s see the ‘Annual Report’.
Most people don’t ask for the ‘accountability’ because they don’t even know, that they don’t know what to ask for…
I was going to run a 10 k run, but when the lead person at the cancer foundation didn’t have a ‘clue’ where the money was going or where the money in the past has gone… ding ding ding ding… Why are people not questioning this?? Friendly alert to wake up and START ASKING and writing to the head of these organizations that you want the details of how the money is dispersed and how the ‘accountability’ is tracked!!??!! These foundations need to have a knowledgable person on staff or to consult with, who knows the questions to ask. Do the foundations have ‘contracts’ with certain ‘research groups’ or ‘pharmaceutical compnaies’??? If so, which one & give me the details of the contract!!!
> Last side comment: A person I know delivered goods years ago to a well known company. As he helped to open the trailer door of the truck, a box fell out & the top broke open. The top of the box said: Warning: Lycra, causes cancer in rats. This person said to me, no wonder why women get breast cancer! I researched materials in the bras and learned that most bras are treated with ‘chemicals’ to help preserve the bra (to last longer when it goes in the washing machine & the dryer). Do your own research, but think about it. If Lycra (or the chemical it’s treated with) causes cancer in a little rat, then perhaps that’s why it takes about 25 years to build up & causes cancer in breast’s. Say a girls starts wearing a bra at 13 + 25 = 38 years of age. The breast has lots of fat, sweating, pores are open & chemicals slowly seep inside over the years. Maybe some people are more ‘sensitive’to it or prone than others..? I don’t know..I am just guessing… Please do your own research.
Blessings and Prayers…
posted October 17, 2009 at 12:45 pm
Dear Lori,
I was just having this conversation with my husband (who lost his mother to breast cancer but agreed with me) the other day…all of the pink in October made me wonder about why this particular form of cancer gets so much more attention then lung cancer or heart disease which both kill more women than breast cancer. I have walked in the Komen walk several times to raise money for breast cancer research and will continue to do so but I have not personally done anything to raise money for breath cancer. Maybe we should get others to band together with us to create more visual opportunities for fund raising for breath cancer. That is all it takes…marketing! The Komen Foundation has done a great job of enlisting companies and even professional football teams in their quest to bring attention to their cause. So rather than complain that breast cancer gets more attention why not contact a marketing genius who cares and get some press and marketing for breath cancer research? I would be interested in assisting with this cause!
posted October 17, 2009 at 1:12 pm
I agree with the author. I have stag 4 small cell cervical cancer (told very rare) I am currently undergoing a second round of chemo. I saw an add for “getting through the holidays seminar” at my cancer center it was sponsored by rays of hope I thought gee I’d like to get through the holidays. So I called and asked if I could join or was it limited to only breast cancer patient’s. I received a phone call later that day and was told I couldn’t be refused but people may ask questions. WHAT is it if I’m not suffering from this form of cancer I’m not having a had time at the holidays?!?! I’m still going to go but it just stuck in my claw that this cancer should be so special. We are all having difficulties with our diseases. I do hope that maybe the research will help all forms of cancer and I don’t wish this on anyone.
posted October 17, 2009 at 1:50 pm
I lost a dear friend to breast cancer two years ago. She was the most positive, loving, thoughtful friend I’ve ever had. Barely pregnant with her second child when diagnosed, she chose to give up her only chance at life by carrying this daughter to term. She never smoked, rarely drank, was a life-long vegetarian, and donated her time, even when too sick to do so, to feeding the hungry and caring for the mentally challenged.
Her cancer was no gift, nor was it more or less special than any other cancer.
She participated in one Komen 3-day (as a supporter, not a walker – she was too weak) before she died. She raised concerns that all the money spent on t-shirts and pink ribbon and marketing was taking away important money from actually finding a cure. Then, after participating, she found that the strength of unity gave her hope, and hope is all she had to go on.
She would’ve been very compassionate to your own illness, and I guarantee she would’ve been the first to pitch in to help as so many helped her. But she may have been saddened that you hold the strength-in-numbers organization skills of the Komen for the Cure (and other orgs) in such contempt.
I hope your negativity doesn’t have an ill effect on your health, and I hope you find the community and care you need to survive. But I wonder, do you hold the same disdain for the Leukemia-Lymphoma Society, and the American Lung Association, and the Juvenile Diabetes Foundation, or are these organizations, all with their own fundraising and awareness events, safe from scorn because they’re not as well-known at the breast cancer organizations?
It’s ever so easy to hate the popular. I know. And I wish you well. I also continue to remember and hold close the love of my friend who so tragically lost her life to cancer, but remained positive until the bitter end.
posted October 17, 2009 at 2:00 pm
As a 20 year survivor of Colon Cancer I did not expect to also develop Breast Cancer. I have completed a course of treatment and am doing OK. BUT let’s remember that more people develop Colon Cancer
than any other kind. It’s just not cool. Research has produced targeted therapies and new chemos but the fight is not over!
posted October 17, 2009 at 2:07 pm
In the last 10 months, I have lost both my mom and mom-in-law to this horrible cancer. One lasted 5 mos after the ‘whipple’ surgery, the other only 6 days. Where is the research and ribbons for this disease? I hope and support women with Breast cancer but it has never slammed my whole life like this one has. I’m sure our family is not the only one.
posted October 17, 2009 at 2:08 pm
Dear Wendy and Bill,
Thank you so much for reading my piece and commenting – for caring enough to share your thoughts. And I thank you for giving me an opportunity to clarify something very important.
I do not have disdain for breast cancer, and I send love and prayers to anyone battling the despicable disease or anyone who has lost someone to the disease. I have lost beloved friends and family to breast, colon, testicular, and other cancers, and as I said, cancer is cancer.
What I object to is the exploitation of breast cancer as a marketing opportunity – and one that is often disingenuous because donated proceeds from sales are minimal or even miniscule.
What I am trying to get across to people is how it feels to have a disease that is so stigmatized and misunderstood.
I applaud all the efforts of the amazing Komen Foundation, which put BC on the map and has led to its fabulously high cure rate. And again, my heart goes out to anyone impacted by breast cancer.
Always hope,
Lori
posted October 17, 2009 at 2:09 pm
Dear Wendy and Bill,
Thank you so much for reading my piece and commenting – for caring enough to share your thoughts. And I thank you for giving me an opportunity to clarify something very important.
I do not have disdain for breast cancer, and I send love and prayers to anyone battling the despicable disease or anyone who has lost someone to the disease. I have lost beloved friends and family to breast, colon, testicular, and other cancers, and as I said, cancer is cancer.
What I object to is the exploitation of breast cancer as a marketing opportunity – and one that is often disingenuous because donated proceeds from sales are minimal or even miniscule.
What I am trying to get across to people is how it feels to have a disease that is so stigmatized and misunderstood.
I applaud all the efforts of the amazing Komen Foundation, which put BC on the map and has led to its fabulously high cure rate. And again, my heart goes out to anyone impacted by breast cancer.
Always hope,
Lori
posted October 17, 2009 at 2:09 pm
In my post I didn’t mention the killer–Pancreatic Cancer
posted October 17, 2009 at 2:15 pm
Beth, my heart goes out to you, and thank you for sharing how it feels to be marginalized. That’s what we’re talking about. I’m so sad that Wendy thought I was being hateful, when it is more a plea for compassion.
I hope you do attend the seminar and trust it will help get you through the holidays. I can’t imagine you would feel left out. It’s not breast cancer patients who marginalize others – it’s more (in my opinion) corporate interests.
With a big hug and many thanks again,
Lori
posted October 17, 2009 at 3:58 pm
I support the breast cancer awareness. But there needs to be a combined effert for cancer. I am a stage 4 Hosdgekins Disease survuvor twice.
Alot of young guys are getting testicular cancer and nothing is ever said in a public service announcement on hot to examine themselves an d the causes.
Prostate cancer kills alot of men as well and there is not the lobby for this cancer.
I just think that the pink month meeds to be the purple month for all cancers
posted October 17, 2009 at 5:48 pm
I agree for most part with Lori’s article about breast cancer and lung cancer. However, the majority of lung cancer cases are caused by a risky habit of smoking. Like many life threatening diseases, breast cancer for the most part has no known cause, but a combination of risk factors, some of which are not controllable, like genetics. Lung cancer is primarily caused by a lifestyle choice, smoking. I have sympathy for all who get any cancer, whatever type it may be. I had a relative die from lung cancer and she quit smoking 20 years before, the irreparable damage unfortunately had already been done.
posted October 17, 2009 at 5:51 pm
To All People with any Sickness and or Disease, I Believe that God can Heal All Sickness and Disease that You May Have. But You Must Believe that He can do this for You. When Jesus walked the Earth, He cured ALL Infirmities, NOT SOME, BUT ALL. (Mental & Physical) The Bible says that He is the same yesterday, today and forever, in Jesus Name (Hebrews 13:8) So when did the Healing Stop ? When We Stopped Believing in what He did for us on the Cross. I Know and Believe what He did for Me at the Cross, so much that He has given me a Healing Ministry. So I now pray for people in need of what God has to offer. His Love, Joy, Peace, & Happiness. This is all we really want and need in life, correct ? It is there for the asking. Ask not, receive not. My people perish for the lack of knowledge. Stop listening to people in your life and Start Listening to God. He is waiting on you to just ask for His Help. Enough is Enough, Do not be afraid; only believe, in Jesus Name (Mark 5:36) Start Praising God for what ever your going through, good or bad. HE LOVES YOU VERY MUCH, DO NOT DENY HIS LOVE FOR YOU. I LOVE YOU ALL VERY MUCH, DAVE
posted October 17, 2009 at 6:10 pm
Kriatin
I am a big supporter of breast cancer awareness month. My Mother passed a week before her 5 years from a rare form of breast cancer – inflammatory (sp) breat cancer which invades most of tissue in the breast. Her breast was red when she went to the doctors and she did have a lump. I think any effor to educate people about breast cancer is worthwhile as long as it states the facts. My Mother didn’t smoke or drink and had no rick factors for breast cancer. How many people know that there are different types of breast cancer some more agressive than others, like my Mothers. I had no idea that there were different type of breast cancer until I went through the entire processs with my Mother. It finally did metatisize to the outside layer lining of the lungas after she had openheart suregey even though the doctors had extensive tested her and looked for any cancer before the open heart surgery. Losing a breast can take a major psychological toll on some women. Thank goodness it did not and we had almost 5 good years with her. Some say breast cancer metastisizes to bone now some say it metastizes to lung. Frankly I think my Mothers’ breast cancer was caused by stress (for reasons I won’t go into because there wouldn’t be enough space. God bless every women with breast cancer and I hope many of them will reach there 5 years and beyond. Keep the education and awareness coming. Not ony can breast cancer take a toll psychologically(sp) it is a killer in many cases.
posted October 17, 2009 at 6:51 pm
I support breast cancer but there are so many other cancers that people are not even aware of. I am a uterine leiomyosarcoma survivor. I don’t see a lot of research being done on this rare cancer. Yes breast cancer is horrible as is any cancer and if you think I am being harsh I am sorry but my focus is on leiomyosarcomas. Why not have a lung cancer month or a skin cancer month? We need to focus on cancers that little is known about and try to develop a treatment or cure for them as well. Do I sound bitter, I don’t mean to but breast cancer is not the only cancer out there that takes lives.
posted October 17, 2009 at 7:59 pm
I had neck cancer twice in the last 6 years and it is very misunderstood. One Dr. refused to treat me because
I told him I don’t smoke or drink. He said he wouldn’t be able to treat a liar and I should tell him the truth or find another Dr. Well, I found another Dr. and was treated with respect and radiation and am now cancer free. The truth is I don’t smoke or drink or suntan or do street drugs,all of which can contribute to this cancer. My Dr. said anyone can get it, the environment can cause harm too, and let’s not forget second hand smoke. I feel I shouldn’t have to justify myself to anyone because I got an “unpopular” type of cancer. I’m all for breast cancer awareness, but we need to address all types. Plus just because I had neck cancer doesn’t mean I’m immune to any other cancers.Here’s to all the people battling an awful illness , to our health and a long happy life.
posted October 17, 2009 at 10:43 pm
Get all your care to god and god will take care of you.
posted October 18, 2009 at 3:17 am
I believe that the month of October is a great month for Breast Cancer awarness. If I had it my way, it would be every month 12 months per year. It is a very, very horrable thing for women to have to go through. My mother is fighting Breast Cancer and has been for the last year and a half. It is not easy for her or her family. We pray each and everyday for our father GOD to cure her and make her well again. My sincere heart and prayers go out to every woman and their family that are having to deal with this awful disease. Just remember to pray every day for a cure. Always remember God doesnt put more on us than we can handle. Gog Bless each and every one of you. GOD is good !!! Jennifer Birmingham, Alabama
posted October 18, 2009 at 3:38 am
I am a huge supporter of breast cancer awareness. Although I have not suffered from it personally, I have relatives that are and relatives that have other types of cancers and who have died for different types. My thought is that Breast cancer doesn’t get to MUCH attention. Just that all other types of cancers don’t get enough. If we LEARN by being educated on the information, we could then support Educate the world by raising your voice. Be heard, spread the word!and you shall have the support. Breast cancer awareness is not a fad. It has taken an entire generation to get where it is. Be a part of the solution and educate us! Let’s learn and support each other!
posted October 18, 2009 at 1:33 pm
Lori – bravely and provocatively said. If you don’t mind, I’d like to link this post to The Colon Club forum, which provides online support for patients and caregivers of those diagnosed with colon, rectal and anal cancers, and works to raise awareness of those diseases.
And I eagerly await your discussion of that other ‘toxic’ platitude: “You just have to keep a positive attitude.”
I’m workin on a shot at another of the toxic platitudes — the one that implies that devout participation in organized religion is the best road to cancer survival.
posted October 18, 2009 at 3:26 pm
Lori, I know how you feel! I am a cancer survivor, but no one throws parades, walks or wear pretty ribbons for me. I survived Hodgekin’s Disease that I was diagnosed with stage 2 at the age of 21. I had multiple surgeries, chemo & radiation therapy & hair loss too. Now, in my 40′s, I am faced with aortic stenosis (a defective heart valve) caused by the very radiation treatments used to save my life. I am now facing a heart valve replacement in the near future. I have a relative & a co-worker who have month-long parties & are showerd with flowers, friends & gifts for surviving breast cancer. No one celebrates my survival, because I had the “wrong” cancer. Where is my support group? Where are my flowers? I matter too!!!
posted October 18, 2009 at 8:19 pm
I am a breast Cancer Survivor two years in Nov 2009 and I beleive everyone who has had to deal with any kind of Cancer should celebrate their life and their survival. I understand that all Cancer survivor’s need support and I suport you all. Im very thankful to be alive I was a stage 3 and cought my own Cancer. Thank God I did or I might not be leaving a post right now. My Cancer was very agressive and I had so many friends and family support. I still remember it like it was yesterday it never faded each step I went through I can still see so clear in my mind. God Bless you all.. And live your life to the fullest.
posted October 18, 2009 at 11:52 pm
I am a breast cancer survivor. I thank G-d everyday that I wake up and can get out of bed. All cancers SUCK but more and more are becoming survivors. The various hospitals here in south Florida have wonderful support groups and the cancer society has a program for all cancer patients with Look good, feel right. I had bilateral mastectomies and am not fortunate enough to have a large or good support system. My mother is elderly and toally thandicapped. My doctors and nurses helped to sget me thru the chemo and were so supportive when my expanders had to be removed as my immune system was rejecting them. I became good friends with the emt’s tha came to my aide during every chemo treatment. I never cried for myself and feel lucky to be alive. I always supported all the cancer groups and since my daughter is a severe asthmatic and my mother has advanced COPD,the lung society is close to my heart. I lwas too sick to participate in the local Gilda Club but hope I can join soon. at that organization all cancers are addressed and there are all types of support groups, fun things and a place free to feel anger or tears or happiness. The worst day of my ordeal was when my ex’s wife told me I deserved cancer and to die of it since I did not take their Lord and Savior into my heart.Being Jewish, I do strongly believe in my own faith, but this was something said because I dared to ask for my alimony which was already three months overdue…try paying the neulasta shot at 18,000 apop without ones’ measly alimony.
Cancers do disrupt lives, cost a fortune even with good insurance. CANCER teaches patience
and to believe. I have and wear pins for all the cancer types. NO one cancer is more important than another and children’s cancers are still more deadly than others.
You want a walk or a parade???? Then organize it and the different organizations will be there to help you.
I hope that the attitude that one cancer is getting more attention than another type is not shared by all. I think everyday is a day to celebrate life and to remember that there are alot morebirthdays to come. More people are surviving but 40,000 women will die of breast cancer this year, which is more than other types. I believe lung cancers still the leader in cancers for both men and women.
posted October 19, 2009 at 12:13 am
I am a niece, grandaughter,and cousin to many brast cancer survivors and to a few who did not. I do support breast cancer awareness to a certain extent (donate, support walks, purchase some products that support) However, I do think it has overwhelming publicity compared to other cancers and other life changing illness. No I don’t think LESS swhould be done about breast cancer awareness or support-I believe other cancers need similar programs. I also would like to mention that I have survived Type 1 Diabetes for over 40 years (for those of you who don’t know it is the type of diabetes that absolutely has to be treated with insulin-different than Type 2 that only some have to be treated with insulin. Fortunately the most severe problem that as happened to me is having bypass surgery at age 46. This was 7 years ago for me. I do consider myself a SURVIVOR.
Thanks for letting me express myself.
posted October 19, 2009 at 7:20 am
I completely 100% agree with the author and sometimes feel like Breast Cancer awareness is being shoved down my throat. I also understand that it is a devastating disease but myself and my family have had to cope with another devasting disease that we have to keep hidden – chronic, debilitating, sometimes suicidal, depression. I cannot tell anyone I work with because I could be deemed a ‘security risk’, even though I have been a loyal, hardworking employee at this job for more than 21 years. I feel more sorry for the ‘inpolitically correct’ illnesses because we suffer in silence or risk the wrath of smug, judgmental, so-called ‘charitable’ people. Now, when I see the pink ribbon on every product imaginable, I feel like screaming. We are ALL survivors of something.
posted October 19, 2009 at 10:10 am
Dear Fellow Combatants and those who mourn,
Again, I am awed and inspired by the strength and incisiveness of these comments, and thank you all for taking the time to write about this.
What I’m hearing through this – or what is reinforced in me – is that there is ONE cancer, even though there are more than 200 kinds, and we should be together on this. Sadly, there is competition for research dollars, publicity, and, yes, compassion.
And, again, please know that I am not against breast cancer, but for awareness of all cancers – be they orphan, stigmatized, or sorely misunderstood. And for research dollars for not only treatment, but prevention!
The emotional side of cancer doesn’t get as much news play; people don’t want to think about suffering or possible death. But it’s only when we put ourselves in someone else’s shoes that we can begin to feel for them. I feel love for all of you – and again my thanks for sharing your thoughts and feelings.
And for all of you who have lost mothers, fathers, sisters, brothers, friends, or other loved ones to cancer, I am so sorry. Cancer SUCKS. It’s NOT FAIR.
Always hope,
Lori
posted October 19, 2009 at 12:13 pm
I’ve always found it odd to see breast cancer signs and banners and ribbons at mostly male events, like NFL football games. So, yes, I agree that breast cancer should not get ALL the attention. An estimated 254,000 men died from prostate cancer in 2007, and yet you seldom see signs and banners at sporting events encouraging men to get a prostate exam. And when you look at how much research money is spent on breast cancer as opposed to prostate cancer, much more is spent per victim on breast cancer. As suggested above, perhaps it’s because everybody loves breasts, but the prostate is seen as being kind of disgusting.
One man in six will get prostate cancer in his lifetime.
One woman in nine will get breast cancer in her lifetime.
I’d love to see more billboards and banners encouraging men to get their prostate checked, and more free screening programs as well. My father was a prostate cancer victim.
posted October 19, 2009 at 1:50 pm
My sister had breast cancer surgery on Wednesday. I found a lump last Sunday. wow….what a week for the weak at heart.
posted October 19, 2009 at 4:48 pm
I think breast cancer is a bad thing to happen to anyone.I support the walks etc, but other cancers should receive some of the support and carrying on that breast cancer does. My husband was diagnosed in Sept.’08 with Chronic Myelogenous Leukemia,CML for short, and I don’t hear any hoopla about this cancer. It’s just as bad as the others.He is on chemo tablets for his cancer. I would like to see more support for all cancers.
posted October 20, 2009 at 6:16 am
As someone who has had three close calls with this I don’t think there can be enough coverage. However I would like to see more emphasis put on providing exams for those who can’t afford them.
posted October 20, 2009 at 10:14 am
Beverly, I’m keeping you and your sister in my thoughts and heart.
Jimbeaux, good point. And I’m so sorry for your loss. Donna, CML is unfortunately another underrecognized cancer. And Gale, I too have had close calls with breast cancer – have had two lumps removed, and a breast biopsy shortly after I completed lung cancer treatment. Close calls can be so traumatic, because one of the toughest things about cancer is dealing with the unknown, and the attendant anxiety.
Again, thanks to all of you for weighing in.
Always hope,
Lori
posted November 4, 2009 at 6:11 pm
Lori -
Thank you for your insightful post. I’m a neversmoker battling Stage IV non-small cell lung cancer at the one-year post-diagnosis point. But my smoking status doesn’t really matter. I found myself disappointed and even angry as a sea of pink surrounded me during October. Even NFL players were wearing pink equipment in honor of Breast Cancer Awareness Month for goodness sake! I know the players won’t be wearing pearl for Lung Cancer Awareness this month (November). I don’t begrudge Breast Cancer research or support in any way, but it really hurts/angers me to see the lack of attention and “blame the victim” stigma attached to lung cancer. For anyone out there who thinks, “I don’t smoke. It can’t happen to me.” — Guess again!!! Fight now for research funding and for awareness. This is a horrific disease and no one deserves it.
- Catharine
posted November 18, 2009 at 6:45 pm
Catharine, thank you for writing and I am 100% with you. I do hope and believe that things will get better – and soon. New treatments will become available as we make headway and the public and legislators learn the facts about LC, hear the stories, and open their hearts and pocketbooks! I wish you well and have faith that we’re going to be around for a long time!
Always hope,
Lori