May is Lupus Awareness Month, and during this time, I’ll be blogging frequently about aspects of the disease, living with it, and coping with it. I realize my personal experience is unique; each person with lupus has his or her [...]
May is Lupus Awareness Month, and during this time, I’ll be blogging frequently about aspects of the disease, living with it, and coping with it. I realize my personal experience is unique; each person with lupus has his or her [...]
Never say “give up!” That’s one of my mottos for life with lupus. The flare that was stirred up after I had to go off one of my lupus meds has also made me extremely sun- and fluorescent light sensitive, [...]
Have you ever had someone tell you you “must” do something for your illness, but your doctor has advised against it? Or, had someone say, “I know someone with [your illness], and he/she is really healthy.” [implying, "what's wrong with [...]
The first book about chronic illness that I wrote, with rheumatologist David Hallegua, MD, was called “Taking Charge of Lupus: How to Manage the Disease and Make the Most of Your Life.” This was not the book’s original title; I’d [...]
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Previous Posts
Moore, Oklahoma, and Beyond
posted 1:00:01am May. 22, 2013 | read full post »
Chronic Illness: What Do You Do with the Fatigue?
posted 7:43:08pm May. 20, 2013 | read full post »
Lupus: Coping Skill # 3
posted 7:24:22pm May. 18, 2013 | read full post »
Struggling to Have a Good Day?
posted 10:11:20am May. 17, 2013 | read full post »
Lupus: Relationships and Us
posted 9:23:43pm May. 14, 2013 | read full post » |